life – Bountiful Spoons

I have been absent for a while and for that I sincerely apologize. I have had an interesting time. I have been in a flare, we went on a weekend getaway, we have had MANY doctors’ appointments, I have been in a FLARE, my meds have changed, I was off my meds for a few months. Life just got interesting and I couldn’t keep up.

Thanks to insurance, I could no longer afford my wonderful RA medication, so I had to stop taking it. It was months before my appointment with my rheumatologist, so I was without meds for that time. We changed over to a new med and I had to give it time to kick in and while it works, it does not work as well as the other one did, nor did it last as long (it is an infusion). So, I just had another appointment with my rheumy and she made adjustments to the medication, and we will see how that goes. We also changed over my pain medication so hopefully I will get better relief. In the meantime, I just keep going. You all know who it goes. We see this every day. At least now I have a little hope.

Our weekend getaway, we have a timeshare that we go to every other year and this year we purchased a weekend getaway in our off year. To say it was a disappointment is an understatement. The hot tub, which is our main entertainment was a huge disappointment, the show we wanted to see was sold out and there was a horrible storm while we were there. AND, I was in a bad flare. The good part was that our suite was very nice. We were happy with that. So, it wasn’t a complete loss. We didn’t get to explore, but we did get to spend a lot of time together. That made the weekend worth it. The hot tub did end up being a funny story so there is that. Haha.

I hope you are ready for Christmas! We are. I put the tree up toward the beginning of November. Haha. I just needed some cheer. It took me a week to get it up and decorated but by golly I did it. I didn’t put out the rest of the decorations, just the tree. I am waiting for a delivery today to wrap those gifts, and our Christmas will be completely ready. We don’t do much now that the grandkids are older, but they enjoy the little bit that we do. I know that my husband will enjoy his gift this year from me and the kids. I got to pick out my gifts this year, so I am very pleased with mine.

I want to wish you all a very Merry Christmas and a Happy New Year. I hope that you have a wonderful holiday.

Love and Peace to you All.

This is typical of me, I have to truthfully say. I am like most of us. When I have a day that I feel decent, I overdo it. It is like I have to make up for all the times I am not abl to do the things I used to do so easily, things that are either difficult or impossible now.

All I did is go on a motorcycle ride for a few hours. That was all it took. I wasn’t even the driver, just a passenger. I thoroughly enjoyed the ride, I have to admit. I feel my best when I am on the bike with my husband. I find a peace then that I do not have any other time in my life. That is my time to really connect with God. This is my time to release all concerns to Him.

I fight with feeling a deep anger for having this disease. I am, I believe, a good person, why was I dealt with this? Then I remember, everything is a lesson, Whether that lesson is for me or for someone else remains to be seen. Maybe this is God’s way of teaching me patience, something I am not know for. I don’t know I was given this cross to bear, but I will bear it to the best of my ability.

I fought hard to find a diagnosis for everything that was going on with me. It took a few doctors and a lot of persistence, but I was finally given answers as to what was taking me down. Whatever this post today may teach you, let it be to never give up. Maybe your life is a lesson to someone else, or maybe it is something you need to learn yourself. Whichever, DON’T GIVE UP! You are loved and wanted.

How long did it take you to get your diagnosis?

#RA, #fibromyalgia, #RAstrong, #chronicpain, #nevergiveup, #youarewanted

Tag: life

I apologize

I used too many spoons